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Joke Beekman
Joke works as a Nurse Practitioner
Rehabilitation Medicine in the SCI unit, at the Rehabilitation Center, Sint Maartenskliniek, Nijmegen, the
Netherlands.
Experience:
Joke has 28 years of experience working in SCI
nursing. She started as a general nurse on the SCI ward, later combining being a senior nurse on the ward
with being the continence nurse for both in/out clinic patients.
Since 2002 Joke works full time as a specialized nurse in the area of neurogenic bladder and bowel management,
combined with the post-discharge care for the SCI patients.
Joke has done numerous presentations and educational activities on a local, national and international level.
She was the project leader for the development of a national guideline on bowel management for people with a
SCI.
Qualifications:
- 1985: Graduated from nursing school
- 1995: Continence nursing training
- 2002-2004: Training as Clinical Nurse Specialist (CNS)
- 2004-2006: Training as a Nurse Practitioner (MANP)
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Jacqui Byrne
Jacqui Byrne, a native of Scotland, is a Staff Development Facilitator in the National Spinal Injuries Unit at Mater Misericordiae
University Hospital (MMUH) in Dublin, Ireland. She has worked in SCI nursing in the MMUH since February 2000.
Jacqui has developed and runs the Clinical Professional Development Programme in Spinal Column/Spinal Cord Injury Nursing, which
has been accredited by UCD. She also developed and coordinates the Spinal Manual Handling Instructors Course in Ireland.
She is co-author of several SCI guidelines in the MMUH, most notably the Guidelines for Weaning a SCI patient from PVS using the
VFB method. She has presented nationally and internationally on various aspects of nursing the Spinal Column/SCI patient.
She currently resides in Dublin, Ireland.
Experience:
Following completion of her general training in Scotland, Jacqui travelled around Australia gaining nursing experience in Care of
the Elderly, Rehabilitation and Acute nursing.
On return from Australia Jacqui settled in Ireland and went to work in the MMUH. She gained experience in both Orthopaedics and
Spinal Nursing before completing her Higher Diploma in SCI Nursing. She spent a year as a Clinical Placement Coordinator and
commenced her current role in 2007.
Her current role is very varied, including teaching, supporting existing staff, orientating new staff, helping staff to achieve
competencies in Spinal Column/SCI Nursing, and developing protocols and guidelines to support staff in nursing the Spinal
Column/SCI patient.
Qualifications:
Jacqui completed a BSc in Anatomy from Glasgow University. She completed her General Nurse Training in Napier University,
Edinburgh. After moving to Dublin she completed her Higher Diploma in SCI Nursing from UCD.
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Lucia Cavallaro
Experience:
Presently Nursing Coordinator at the USU
Hospital, Catania, Italy
2011 -> present:
- Head Nurse at the USU Catania
1993 -> 2011:
- Intensive Care Nurse at Cannizzaro Hospital of
Catania
Congress presenter:
-
Genova XVII National Congress SIMS speaker "The Importance of Nutrition in Wound healing in L.D.P.” 2016
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Assisi National Conference "The global assistance to people with spinal cord injuries" speaker "Work multicenter Toolkit welfare area Report" 2015
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Roma National Conference "Age quo Ages" speaker "Multicenter Jobs: Nutrition of the person with spinal cord injury” 2014
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Bergamo XVI National Conference of SOMIPAR speaker "The psychological caregiver appearance” 2014
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Catania Seminars 4 edition “The rehabilitation team” speaker “The Nurse in the rehabilitation team”
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Ostuni (Bari) National Conference "The network of the Territorial Services and independence of people with spinal cord injuries" speaker "Forming the caregiver" 2013
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National Conference "From the evidence Scientific to take charge of the person with spinal injury" speaker "The realization Spinal Unit of Catania" 2012
Qualifications:
Degree in Nursing Science
Master's 1° liv.in Nursing Management with
function of Coordination, Training of Trainers in the field of Social Health, CEFPAS Course Operator, 118
Catania Emergency Relief central operator and helicopter rescue.
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Maureen Coggrave
Experience:
I have worked with individuals with spinal cord
injury for more than 25 years at The National Spinal Injuries Centre, Stoke Mandeville Hospital, UK. I have a
particular interest in neurogenic bowel dysfunction and management and as a nurse specialist developed the
first nurse-led neurogenic bowel care clinic in the spinal cord injury setting. I have also undertaken
research around this topic for many years and I am now a research fellow at King’s College,
London.
Qualifications:
PhD, MSc, RN
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Isabelle Cortet
Experience:
1987 -> 2016:
- Urology Department at Bichat Claude Bernard
Hospital
1986:
- Urology Department at Kremlin Bicetre
Hospital
1985:
1982 -> 1985:
- Hepato-Gastro-Enterology Department at
Kremlin Bicetre Hospital
Hospitalization Service:
Ambulatory Surgery
External Urology Care Nurse Consultation
Occasional Oral Intervention:
SIFUD Congress
Nurse Day "Educational Activities in the Hospital"
Occasional Trainer:
Institute of Nursing Education Bichat Hospital
Industry
Qualifications:
- French Official Qualification for Nurses — June 1982 at APHP Antoine
Béclère 92140 Clamart
- Certificate in Clinical Ostomy Care, Institut ESFORD Paris
2003
- Urodynamic University Diploma, Université Paris Diderot
2010
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Alessio Conti
Experience:
Working in the field of Spinal Cord Injuries since 2009, I have immediately focused my research on people with SCI and their caregivers. From 2011, I have also collaborated with the University of Turin in the training of nursing students with lessons and direct clinical experience in the Spinal Cord Injury Unit of Turin.
I am really passionate about the educational and relational aspects of my work.
Currently my PhD is aimed at the study of the issues related to self-care of people with SCI, and the impact it has on their families.
Qualifications:
- Registered Nurse Degree in 2008 – University of Turin, Italy
- Master Degree in Nursing Sciences and Midwifery in 2013 – University of Turin, Italy
- PhD Student at first year 2015 – University of Rome “Tor Vergata”
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Liz Croxon
Experience:
Presently Clinical Facilitator in the National Rehabilitation Hospital (NRH) Dún Laoghaire, Dublin.
Covering all areas of education in relation to complex specialised rehabilitation and also encompassing
nurses from the community care setting throughout Ireland. She has extensive experience in the Spinal Cord
System of Care, (SCSC) including the acute phase and rehabilitation process for over 25 years.
Works in conjunction with the Mater Hospital Dublin to provide a cross site Clinical Professional Development
Programme in Spinal Column / Spinal Cord Injury Nursing, which is affiliated to University College Dublin.
An educator for the Management of the Neurogenic Bowel Dysfunction course, including a "Train the Trainer" programme for the community care setting.
Instructor for Management of Actual or Potential Aggression (MAPA) programme.
Member of the steering group in the NRH, "Pressure Ulcer to Zero" project led by the Health Service
Executive.
Qualifications:
- RGN
- RM
- Certificate in Rehabilitation Nursing
- Post Graduate Diploma in Health Science (Clinical Teaching)
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Sophia De Baere
Sophia has worked as a nurse in the
rehabilitation unit of the University Hospital in Ghent, Belgium for 3 years, where patients with spinal cord
injuries undergo a multidisciplinary rehabilitation program. For two years she has specialized in
continence problems.
Experience:
2013 -> today:
- Incontinence rehabilitation nurse, University
Hospital, Ghent
2011 -> 2013:
- Nursing jobs and interim on different hospital
wards
Qualifications:
- RN, Artevelde hogeschool Ghent
- Master of Science in Nursing from the University of Ghent
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An De Baeremaeker
An works as a head nurse on a ward of patients
with spinal cord injuries in the rehabilitation centre of the University Hospital Ghent,
Belgium.
Experience:
2012 -> today:
- Head nurse on a ward of patients with spinal
cord injuries
- Board member of the Belgian Association of
Rehabilitation Nurses
2007 -> 2012:
- Member of the staff direction nursing University
Hospital Ghent
2001 -> 2007:
- Nurse on ward of patients with acquired head
injuries
1997 -> 2001:
Qualifications:
- RN
- Master of Science in Nursing from the University of Leuven
- Postgraduate woundcare, module pressure ulcers and module basic woundcare
- Management development program University Hospital Ghent
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Lorraine Donovan
Experience:
Current post: Senior Nurse for Neurosciences and ALAC at Cardiff and Vale.
High-performing manager with more than 10 years of health care experience in hospital and medical
environments. Lorraine started her nursing in haematology and went from staff nurse to team leader then
Deputy Sister. After a short time in the Sisters role she was asked to join a management turnaround team at
the Welsh Regional Rehabilitation Centre for Spinal Injuries. During her third year she was nominated for the
Manager of the Year award by her staff and achieved runner up in the finals.
Qualifications:
B.S. Nursing
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Laura Farnsworth
Laura works as a Spinal Cord Coordinator on a ward of patients with
spinal cord injuries in the rehabilitation centre of the Frazier Rehabilitation Institute, in Louisville, Kentucky, USA.
Experience:
2013 -> today:
- Neuro Rehab/Spinal Cord Coordinator, Frazier
Rehabilitation Institute of KentuckyOne Health, Kentucky
2010 -> 2012:
- Charge Nurse, Masonic Homes of Kentucky,
Chandler Rehab House, Kentucky
2007 -> 2011:
- Physician Liaison, American Sleep Medicine,
Kentucky
Qualifications:
- Licensed Practical Nurse — Galen College of Nursing
- At present studying to complete a Bachelor of Nursing Degree
- CPR and First Aid for Health Care Providers
- Team Approach to Bowel and Bladder Management after SCI
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Debbie Green
Experience:
Debbie qualified as a registered nurse over 30 years ago and has spent 25 years in senior nurse positions at
the National Spinal Injuries Centre at Stoke Mandeville Hospital. She has a particular interest in Nurse
Education and Women's Health issues.
She was recently recruited by a national charity, The Spinal Injuries Association, where she is developing a
new role of nurse advocate.
Qualifications:
BA (hons), Women's Health, Diploma Management
Studies, RGN, Orthopaedic Nursing Cert, ENB 371 Nursing Patients with Spinal Cord Injury, City and Guilds
730, Further and Adult Education
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Stephanie Hegarty
Experience:
Studied four years General Nursing in Letterkenny I.T. After qualifying worked in an acute general surgical
ward in Letterkenny University Hospital for eight months.
May 2012: I travelled to Australia and lived there for a year where I worked as an agency nurse in Sydney.
July 2013 to present: On return from Australia I gained employment in the National Rehabilitation
Hospital, Dublin. I worked for 15 months in brain injury rehabilitation and then moved to the spinal cord
injury ward.
Qualifications:
- Bachelor of Science (Hons.) in General Nursing
- Continuous Professional Development Course in Spinal Cord Injury (Level 8)
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Peter Horan
I am a Charge Nurse with respiratory lead on the Spinal Injuries and
Neuro-Rehabilitation Centre, Sheffield Teaching Hospitals NHS Foundation Trust.
Experience:
My first experience with spinal cord injury was working as a live-in respite carer for people with high-level spinal injury.
This inspired me to do my nursing degree and come and work on the spinal unit in Sheffield. For my elective I worked on the Ottawa
Spinal Injuries Rehab Unit.
I have worked on the acute ward with respiratory and ventilated spinal patients for most of my career. Three years ago, along with
my colleague Mick Hodgkinson, I began my post as Charge Nurse with respiratory lead.
My work includes invasive and non-invasive ventilation with spinal cord injured patients, and educating health care professionals
and carers in the respiratory management of their patients/clients to facilitate discharge home or to a safe destination.
We also work with children with respiratory needs undergoing transition of care from children’s to adult services, supporting and
training teaching staff in the community.
Qualifications:
RGN, BA (Hons)
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Catherine Laudignon
Experience:
- 26 years at Hôpital La Pitié-Salpêtrière à Paris
- First 10 years in classical hospitalization with SCI patient
management at surgical level
- 7 years with SAMU and paediatrics
- 3 years with kidney transplant department
- Urology nurse technical sector since 2009
- Active participation in the development of fusion tool for prostate
biopsies
- Urodynamic technician with English validation of Urodyn route
- Coordinator of the Therapeutic Patient Education practice for
catheterisation
Qualifications:
- 1990: French Official Qualification for Nurses
- 2014: University Certificate in Therapeutic Patient Education
Practice
- 2015: University Diploma with Urologic Expertise (Masters Degree)
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Janneke Martens
Janneke works as a Nurse Practitioner in the
Centre for Rehabilitation at the University Hospital of Groningen in the Netherlands.
Experience:
Janneke qualified as a nurse over 25 years ago. She has worked in the SCI center for over 18 years now in different positions. Since 1999 she is qualified as a continence nurse. Recently, she got her Masters degree. Her area of interest is mainly continence care (bowel and bladder management) in patients with neurological diseases.
Qualifications:
- 1994 - Registered Nurse, Bachelors Degree
- 1999 - Continence Nurse
- 2016 - Master of Advanced Nursing Practice, Msc, Hanze University of Groningen
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Gareth McCay
In his youth, Gareth McCay was a budding footballer who had spent time at English Championship and Premier League clubs. After a
serious injury ended his career, Gareth went back to college, obtained a law degree from the prestigious Queen’s University in
Belfast and joined Northern Ireland’s largest commercial law firm.
In 2010, Gareth had an accident at home and suffered catastrophic injuries which resulted in him spending 11 months in Musgrave
Park Hospital’s Spinal Rehabilitation Unit in Belfast. Gareth’s story is one of positivity, determination, and how to rebuild a
life following spinal injury.
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Esther Middelweerd
Esther is a nurse practitioner in the SCI Center De Hoogstraat Utrecht, Netherlands.
She specialises in wound care, continence for people with SCI and Cauda Equine patients.
Experience:
2012 -> today:
- Nurse practitioner in the out-patient care with
SCI patients
1996 -> 2012:
- Nurse on a ward with SCI patients
Qualifications:
- RN — Hogeschool Utrecht
- MANP — Hogeschool Utrecht
- Module pressure ulcer — Wound Care Society, Leiden
- Module wound care — Wound Care Society, Leiden
- Continence nurse — Bunnik
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Paula Muter
Clinical Nurse Specialist Urology Spinal
Injuries and Neuro-Rehabilitation Centre Sheffield Teaching Hospitals NHS Foundation Trust
Experience:
Worked in Spinal Injuries Centre for over 20 years in various roles.
Currently works with the urology team providing clinical expertise to a complex group of patients who have
had a spinal cord injury or spina bifida.
Involved in the transition of patients from the Sheffield Children’s Hospital who have complex
neurourological problems.
Set up and manage nurse-led Cauda Equina Clinics.
Facilitate CES patient support groups.
Manage nurse-led clinics / bladder and bowel management, counselling / sexual dysfunction / rectal
irrigation.
Undertaking a piece of research with Medical Psychology investigating managing the psychological needs of
patients with CES.
Currently training to provide flexible cystoscopy and intravesical injection of Botulium toxin injections to
patients with SCI within the hospital outpatients department.
Qualifications:
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Karen O'Donnell
Experience:
Karen has worked in a variety of clinical ward settings as an RGN from 1988 until 2003 (staff nurse and
deputy sister) and then as an RN Child (Ward Manager) from 2003 until 2013 at the National Spinal Injuries
Centre (NSIC), Stoke Mandeville Hospital.
In 2013 Karen received awards from the Spinal Injuries Association in acknowledgment of Women in Spinal
Injury Awards (WISCI) and the prestigious Stephen Bradshaw Award in recognition of the pioneering work in
establishing a children and young persons' unit at the NSIC.
Karen’s experiences included management of all aspects of acute care and rehabilitation for adults, children
and young people with Spinal Cord Injury.
Qualifications:
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Sara O'Shea
Experience:
Sara has worked at the National Spinal Injuries Centre, Stoke Mandeville hospital, UK, for 30 years. She
started work at Stoke Mandeville Hospital as an Auxiliary Nurse in 1987. Her interest in Spinal Cord Injuries
began a year earlier when she was a voluntary worker at the Hospital’s Young Disabled Unit.
She began her General Nurse Training in 1988 and since qualifying has had a variety of roles within both
acute services and in the rehabilitation of both adults and children with spinal cord injury.
She completed the ENB spinal course during her time as a Staff Nurse and became Ward Sister on the pre-discharge ward. During this time she became an active member of the Unit’s "Children’s Weeks". Sara became
part of the team of clinicians that championed dedicated children’s services at the NSIC and in 2004 she
transferred her skills solely to the then newly opened NSIC children’s ward (St Francis ward).
In 2008 Sara furthered her knowledge and skills in paediatrics by completing her Registered Children’s Nurse
training. In 2010 she was involved in the ward refurbishment which equipped the ward with further facilities,
equipment and resources to meet the needs of the child and family and increase the ward capacity to nine
beds.
Her role now is as Ward manager which involves responsibility for all the care for children and young persons
(0-19 yrs) housed on St Francis ward, as well as advice and liaison for a population of over 100 children
that return for review and rehabilitation throughout the year. She also liaises nationally and
internationally with others caring for and developing services for young persons with SCI.
In 2010 Sara’s "Services to Tetraplegia"were recognised by Rgain Sports Charity. In the last year Sara was
part of the winning "Outstanding Team" (St Francis ward) at the 2014 SIA awards and the team was also
recognised in the Buckinghamshire Healthcare NHS Trust Staff Awards.
Qualifications:
- RN
- RSCN
- ENB (Spinal Injuries)
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Ginger Salvadalena
Ginger is the Principal Scientist, Global
Clinical Affairs, at Hollister Incorporated in Chicago, Illinois where she designs and helps conduct clinical
research studies.
Experience:
For the past 28 years Ginger has practiced Wound, Ostomy and Continence Nursing, first as a Medical Surgical
Clinical Nurse Specialist in acute care hospital practice, and since 2012 in various roles in the medical
device industry.
She has authored multiple peer-reviewed publications and book chapters, and presented to national and
international audiences. She serves as a reviewer for the Journal of Wound, Ostomy and Continence Nursing,
and serves on multiple committees for the WOCN Society.
Qualifications:
- RN
- DipHE
- Master’s Degree, University of Washington in Seattle, Washington
- PhD in Nursing, University of Illinois at Chicago
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Sören Tiedemann
Experience:
2009 -> today:
- Respiratory therapist of the SCI Department BG
Klinikum Hamburg
2011 -> 2015:
- Head of the scientific advisory board
"Artificial ventilation" of the German Medical Society for Patients with SCI (DMGP)
1998 -> 2009:
- Male nurse at the SCI Department BG Klinikum
Hamburg
- SCI-ward especially for patients with repiratory
paralysis
- IMC-SCI ward with artifical ventilation
2004 -> 2009:
- Lecturer / Instructor for artifical ventilation
for homecare nursing teams
1995 -> 1998:
- Nursing training at the Marienkrankenhaus
Hamburg
Qualifications:
- Respiratory therapist (completed training & in function)
- Ward management / head nurse (completed training & in function)
- Mentor (completed training & in function)
Memberships:
- German Medical Society for Patients with SCI (DMGP)
- International Spinal Cord Society (ISCoS)
- German Respiratory Society (DGP)
- German Interdisciplinary Society for Homeventilation (DIGAB)
- European Respiratory Society (ERS)
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Casper van Koppenhagen
Background:
- Ph.D. in Rehabilitation
- Current position: Rehabilitation physician at the University Medical Center of Utrecht
- 2012-2015: Spinal Cord Rehab Center De Hoogstraat in Utrecht
Selected published papers:
- Post MW, van Leeuwen CM, van Koppenhagen CF et al. “Validity of the Life Satisfaction Questions, the Life Satisfaction Questionnaire, and the Satisfaction with Life Scale in Persons With Spinal Cord Injury.” Arch Phys Med Rehabil. 2012 Apr 3.
- van Leeuwen CM, Hoekstra T, van Koppenhagen CF, de Groot S, Post MW. “Trajectories and predictors of the course of mental health after spinal cord injury.” Arch Phys Med Rehabil. 2012 Dec; 93(12):2170-6.
- van Koppenhagen CF, de Groot S, Post MW, Hoekstra T, van Asbeck FW, Bongers H, Lindeman E, van der Woude LH. “Patterns of changes in wheelchair exercise capacity after spinal cord injury.” Arch Phys Med Rehabil. 2013 Jul; 94(7):1260-7.
- van Koppenhagen CF, de Groot S, Post MW, Van Asbeck FW, Spijkerman D, Faber WX, Lindeman E, van der Woude LH. “Wheelchair exercise capacity in spinal cord injury up to five years after discharge from inpatient rehabilitation.” J Rehabil Med. 2013 Jul; 45(7):646-52.
- van Koppenhagen CF, Post MW, de Groot S, van Leeuwen C, van Asbeck F, Stolwijk-Swüste J, van der Woude L, Lindeman E. “Longitudinal relationship between wheelchair exercise capacity and life satisfaction in patients with spinal cord injury: A cohort study in the Netherlands.” J Spinal Cord Med. 2014 May; 37(3):328-37.
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Stida Vreede-ten Brink
Experience:
1999 -> today:
- Working in the Paediatric Hospital in the
clinical and outbound clinics
1987 -> 1999:
- Beatric Paediatric Hospital, University Medial
Center Groningen in the outbound clinic
1981 -> 1987:
- Working at a retirement home
1971 -> 1981:
- learning as nurse entrance working on deferens
departments
Qualifications:
Nurse Consultant Paediatric
Nephrology
Specialized in wound, continence and stoma
care
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Eva Wallace
Experience:
Currently working in the National Rehabilitation Hospital (NRH) Dún Laoghaire, Dublin for over 33 years, with
extensive experience in the speciality of urological care of spinal cord injury (SCI) individuals.
At present assisting in the nursing education department with an aim to increase nurse’s knowledge and skills
in evidence based continence promotion and management. This includes all NRH staff and those in the community
setting throughout Ireland. All courses are accredited by the Nursing and Midwifery Board Ireland (NMBI)
In the process in developing an animation video for neurogenic bowel management in SCI individuals.
Membership of subcommittees: Guidelines for the Prevention of Catheter-associated Urinary Tract Infection - A
Strategy for the Control of Antimicrobial Resistance in Ireland (SARI).
Member of the guideline development group: Guidelines for the Management of Neurogenic Bowel Dysfunction
after Spinal Cord Injury.
Annual adjudicator for European Association of Urology Nurses (EAUN).
Qualifications:
- RGN
- RM
- Certificates in: Accident and Emergency Nursing, Rehabilitation Nursing, Continence Promotion, Urodynamics
- Post Graduate Diploma in Management
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Andreas Wendl
Experience:
2010 -> today:
- Head nurse at the SCI Department, BG Klinikum
Hamburg
1995 -> 2010:
- Head nurse at the SCI Department BG Trauma
Center in Tübingen
1985 -> 2010:
- Male nurse at the SCI Department BG Trauma
Center in Tübingen
1982 -> 1985:
- Nursing education at the University Hospital
Tübingen
Qualifications:
- Ward - management
- Management of chronicle wounds (ICW)
- Member of the DMGP workgroup "nurses"
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Amber Wighman
Amber is following the Master Advanced Nursing
Practice in Leiden and works in Rehabilitation Centre Reade, Netherlands.
She specialises in wound care for people with
spinal cord injuries, acquired brain injury and amputation.
Experience:
2015 -> today:
- Following: Master Advanced Nursing
Practice
- Specialization:
- Wound Care
- Sexuality and Intimacy
2013 -> 2015:
- Nurse on ward of patients with spinal cord
injuries
Qualifications:
RN
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